'We're never gonna forget what happened': The trauma of Amelia and Zach's IVF experience lingers (2024)

Amelia Hawkshaw and her husband Zach Longe's round of IVF produced 17 embryos. Seventeen chances to make their dream of becoming parents come true.

"We were so overjoyed," Amelia said.

But that dream turned to tragedy in August last year.

"We got a call … to say that the embryos had been contaminated with bacteria and so those 17 had to be destroyed, just all of them," Amelia said.

"Those 17 embryos, I think they were all like potential children that we could have had."

The couple had used a fertility unit at Sydney's Royal Prince Alfred Hospital. The low-cost clinic is state-government-funded and run in collaboration with one of Australia's big-three IVF companies, Genea.

Ten months on, the couple's still fighting to find out how the contamination happened. Time and time again their attempts have been stonewalled by the company.

A Four Corners investigation into the lucrative IVF industry has found when things go wrong, corporate giants like Genea don't always own up. There's a lack of transparency and companies aren't being held to account.

'Anger, frustration, heartbreak'

Vikki Muller and Chris Homer's journey through IVF has also been one of setbacks and struggles.

They were forced to delay trying for a baby after Chris was diagnosed with prostate cancer a few years ago.

'We're never gonna forget what happened': The trauma of Amelia and Zach's IVF experience lingers (1)

Then, when Vikki underwent an egg retrieval procedure, a blood vessel was pierced and she suffered an internal bleed.

Even through the pain, she was relieved that her fourth round of IVF had produced two healthy embryos.

"Two embryos for us was the best chance we've had to get pregnant in five years," Vikki said.

She was still recovering in hospital when they learned their precious embryos had to be destroyed.

"They were like gold to us," Vikki said.

"I remember just switching off like a machine and just dropping my head, and I just went into a bit of a blur."

The couple was told there had been contamination in Genea's lab — bacteria in the embryology solution was believed to be the likely cause.

That just left them with more questions.

"How on earth does that get infected? Just delve a little bit more into that to me, please. Was someone not wearing gloves [when] handling it? I mean what happened?" Chris said.

"It just became a source of anger, frustration, sadness, heartbreak."

Questions and no answers

Both couples pressed Genea for more information.

Vikki said there was little communication and no offer of psychological support.

"It was like as soon as we got discharged from hospital, we were non-existent. They basically made me feel like a bad person for wanting to have a baby," Vikki said.

'We're never gonna forget what happened': The trauma of Amelia and Zach's IVF experience lingers (2)

Early on, Amelia and Zach were told by Genea that a staff member with dermatitis on their hands had been working at the lab that day.

Amelia said since then it's been "absolutely impossible" to extract information from Genea.

"It's clear that human error was involved in the incident and human error does happen, but for us, what's really caused the trauma and affected us long-term has been how we've been treated since the incident occurred," Amelia said.

What the families are after is the report from the company's investigation, known as the root cause analysis.

Genea has refused to hand over the report due to the presence of "sensitive private patient data and confidential commercial information".

Vikki said that explanation was "rubbish".

"That's just protecting themselves. That's going into damage control.

"Give me some information and some answers. Regardless of if you are private or public, it's my body, it's our embryos that you destroyed or didn't look after. How difficult is it to be honest and open to someone? I don't understand."

Last month, the couples enlisted the help of Jacqui Munro, a member of NSW parliament's upper house. They hoped political pressure would force Genea and NSW Health to be transparent about what went wrong.

But the public release of the root cause analysis was blocked after Genea raised "significant concerns" with NSW Health.

NSW Health did not respond to Four Corners' questions about what those concerns were.

Ms Munro said it was a concerning lack of transparency.

"When we have public-private partnerships, it is absolutely incumbent on governments and departments to ensure that private organisations are accountable and are actually doing the right thing by taxpayers and by their patients, particularly in women's health," Ms Munro said.

'We're never gonna forget what happened': The trauma of Amelia and Zach's IVF experience lingers (3)

Amelia's sister Sophie, who donated the eggs the couple used to create their embryos, has been with the couple every step of their fight.

"What does this [root cause analysis] have in it that they're trying so hard to prevent us from seeing?" Sophie said.

"We're not going away … if it takes going to court, we're not going away.

"I think people need to know that when things go wrong, this is what Genea does, this is how they treat people, this is the company you're getting into bed with."

Genea told Four Corners that it "follows strict protocols and takes every care to avoid any contamination risk. However, in rare instances, contamination can occur."

"Before commencing treatment, patients are informed of and consent to such risks," it said.

The company said it had been "transparent about the incident with all stakeholders" and had "engaged in open disclosure with the patients".

Revenue and responsibility

This lucrative industry is only getting bigger. One in every 18 births in Australia is now an IVF birth.

The three big companies Genea, Monash IVF and Virtus account for more than 80 per cent of the industry's total revenue.

These companies benefit hugely from Australia's Medicare system.

An IVF cycle at one of the big clinics can cost between $10,000 and $12,000, and about half that cost is covered by taxpayers.

Fertility researcher Karin Hammarberg said that money should come with an expectation of transparency.

"If shareholder profits are to an extent drawn from taxpayers' money, I think the taxpayer should have the right to know how the money is spent and where the money is going," Dr Hammarberg said.

'We're never gonna forget what happened': The trauma of Amelia and Zach's IVF experience lingers (4)

Professor Bill Ledger, a fertility specialist who's worked for 30 years in public and private IVF clinics, agreed.

"To my mind, it's quite unique that taxpayer money is transferring pretty much directly into private equity companies via a healthcare provision," Professor Ledger said.

"It's a system that has evolved … over the years. Maybe it's time for a major review just to ensure it's all functioning as it should."

The future

Ten months on from losing her precious embryos, Vikki is now with a new fertility clinic.

She turned down Genea's offer of a free cycle through the public system.

"To be honest, that was sort of an afterthought I think from Genea, and it was a bit insulting, if I'm completely honest," Vikki said.

She's trying her best to stay optimistic but says the experience is still taking its toll.

"I think I've changed a lot. I think I'm a lot sadder and not as positive as I used to be."

"I feel like I sort of got hit by a big thunderstorm and it just seems to never be ending."

Amelia and Zach are now pregnant and are expecting in November.

"The trauma is still there but we're hoping to be moving on with growing our family, which we're really excited about," Amelia said.

"We're never gonna forget what happened … it's always gonna affect me in some way.

"What's important to me now is that patients are supported in the future if something like this were to ever happen again."

Watch Four Corners' full investigation When IVF Goes Wrong now on ABC iview.

Be first to know about Four Corners' next big story: subscribe to the newsletter and follow on Facebook.

Posted, updated

'We're never gonna forget what happened': The trauma of Amelia and Zach's IVF experience lingers (2024)

FAQs

What is the trauma after IVF failure? ›

They may be experiencing feelings of grief and loss, failure, inadequacy, disappointment, jealousy, anger, frustration, isolation and more. It's important to realise that these feelings are perfectly normal reactions to going through experiences that can take their toll both emotionally and physically.

What is the dark side of IVF? ›

Complications of Pregnancy

Conceiving with IVF does carry an increased risk of pregnancy complications. In particular, there is an increased risk of preterm birth, low birth weight, hypertension, maternal gestational diabetes, and placental complications⁷.

What are the emotional effects of IVF? ›

Couples undergoing IVF treatment may feel anger, despair, frustration, sadness, guilt, jealousy, excitement, hope, and/or happiness. It is common for both the male and female to experience depression, anxiety, and stress prior to treatment commencing. These emotions can be heightened after a failed attempt with IVF.

Can you do IVF at 42 with your own eggs? ›

The chances of IVF using your own eggs at 42 are approximately 9%-10%, but it can differ individually, based on your unique health characteristics.

How successful is IVF after failed attempts? ›

Many couples will have a successful second IVF. The chances for that happening depends on many factors, including: Age of the female partner. Egg quality and egg quantity.

What are the emotions after failed IVF? ›

It's normal to feel a range of emotions after a failed IVF treatment, including sadness, disappointment, anger, or even guilt, to name a few. Allow yourself to acknowledge and experience these emotions. Don't try to suppress or invalidate your feelings.

Do IVF babies look like mom or dad? ›

The possibility of the IVF resembling its mother is thin as a donor egg doesn't share any of its genes with its intended mother. Nonetheless, if the sperm used is that of her partner, the baby may look like its father. This is simply because both share the same genetics.

Do IVF babies get sick more often? ›

IVF is associated with an increased health risk for the offspring in the form of malformations, functional disorders, and a poorer peripartum outcome. This is possibly caused by parental factors, but also by factors related to the IVF technology used.

Are IVF babies more fussy? ›

These results were further confirmed by a subsequent study [29], where the Still Face procedure was administered to 70 IVF mothers and 63 controls at 4 months postpartum: significant differences emerged only in terms of more fussiness in IVF infants (during the stressful episode) compared to control ones; other infant ...

Can crying affect IVF? ›

The research cautiously concluded that physiological and psychological stress did not negatively affect IVF outcomes; however, high follicular cortisol concentrations may have positive effects on pregnancy rates [35].

How bad are IVF mood swings? ›

Mood fluctuations: Fertility treatments can be a time of incredible hope and optimism, as well as distressing pessimism. You may bounce from feeling very hopeful to moments of doom and gloom, tinged with a lot of anxiety in between. Again, this is completely normal.

What happens to your body after failed IVF? ›

A failed IVF cycle can have various implications. It can have multiple physical implications. Hormone imbalance after failed IVF is also common and shows various physical symptoms. It's normal for women who've had a failed IVF to experience physical symptoms such as bloating, cramping, and significant fatigue.

What is the oldest woman to get pregnant naturally with her own eggs? ›

The oldest mother verified by Guinness Records to deliver a child after conceiving naturally was 59. Eggs, which decline in quality and quantity most significantly in the mid-30s to early 40s, are the limiting factor.

Are donor eggs your baby? ›

Those who are thinking about using donor eggs may be curious about whether any children born from those eggs will have their DNA. Any embryo created from a donor egg will contain the egg donor's DNA since every embryo has DNA from both the egg and the sperm in equal amounts.

What is the youngest age for IVF? ›

The ART Act outlines a general age bracket for availing IVF services:
  • Women: 21 to 50 years old.
  • Men: 26 to 55 years old.
Mar 22, 2024

What are the long term effects of failed IVF? ›

It can have multiple physical implications. Hormone imbalance after failed IVF is also common and shows various physical symptoms. It's normal for women who've had a failed IVF to experience physical symptoms such as bloating, cramping, and significant fatigue.

What are the stages of grief after failed IVF? ›

People may experience a wave of rage and frustration after the initial shock goes away. They might have a strong sense of disappointment and wonder why they had to experience this. When anger is focused inward, it can result in emotions of shame, guilt, and self-blame.

What is infertility trauma? ›

Infertile couples must grieve 2 losses simultaneously: the loss of their ability to procreate as well as the loss of the hope for children. Women who have difficulty conceiving may react to these dual realizations as simply loss, or alternatively as psychological trauma.

Can you have PTSD from IVF? ›

The process is so stressful, in fact, that research found that women who undergo fertility treatments may become distressed enough to develop post-traumatic stress disorder (PTSD).

Top Articles
Travis Scott Net Worth: How the Rapper and Entrepreneur Makes His Millions - Tracked Wealth
What's Travis Scott's Net Worth - WhatIsTheNetworth.com
Spasa Parish
Rentals for rent in Maastricht
159R Bus Schedule Pdf
Sallisaw Bin Store
Black Adam Showtimes Near Maya Cinemas Delano
Www.myschedule.kp.org
Ascension St. Vincent's Lung Institute - Riverside
Understanding British Money: What's a Quid? A Shilling?
Xenia Canary Dragon Age Origins
Momokun Leaked Controversy - Champion Magazine - Online Magazine
Maine Coon Craigslist
How Nora Fatehi Became A Dancing Sensation In Bollywood 
‘An affront to the memories of British sailors’: the lies that sank Hollywood’s sub thriller U-571
Tyreek Hill admits some regrets but calls for officer who restrained him to be fired | CNN
Haverhill, MA Obituaries | Driscoll Funeral Home and Cremation Service
Rogers Breece Obituaries
Ems Isd Skyward Family Access
Elektrische Arbeit W (Kilowattstunden kWh Strompreis Berechnen Berechnung)
Omni Id Portal Waconia
Kellifans.com
Banned in NYC: Airbnb One Year Later
Four-Legged Friday: Meet Tuscaloosa's Adoptable All-Stars Cub & Pickle
Model Center Jasmin
Ice Dodo Unblocked 76
Is Slatt Offensive
Labcorp Locations Near Me
Storm Prediction Center Convective Outlook
Experience the Convenience of Po Box 790010 St Louis Mo
Fungal Symbiote Terraria
modelo julia - PLAYBOARD
Poker News Views Gossip
Abby's Caribbean Cafe
Joanna Gaines Reveals Who Bought the 'Fixer Upper' Lake House and Her Favorite Features of the Milestone Project
Tri-State Dog Racing Results
Navy Qrs Supervisor Answers
Trade Chart Dave Richard
Lincoln Financial Field Section 110
Free Stuff Craigslist Roanoke Va
Wi Dept Of Regulation & Licensing
Pick N Pull Near Me [Locator Map + Guide + FAQ]
Crystal Westbrooks Nipple
Ice Hockey Dboard
Über 60 Prozent Rabatt auf E-Bikes: Aldi reduziert sämtliche Pedelecs stark im Preis - nur noch für kurze Zeit
Wie blocke ich einen Bot aus Boardman/USA - sellerforum.de
Infinity Pool Showtimes Near Maya Cinemas Bakersfield
Dermpathdiagnostics Com Pay Invoice
How To Use Price Chopper Points At Quiktrip
Maria Butina Bikini
Busted Newspaper Zapata Tx
Latest Posts
Article information

Author: Kerri Lueilwitz

Last Updated:

Views: 6043

Rating: 4.7 / 5 (47 voted)

Reviews: 86% of readers found this page helpful

Author information

Name: Kerri Lueilwitz

Birthday: 1992-10-31

Address: Suite 878 3699 Chantelle Roads, Colebury, NC 68599

Phone: +6111989609516

Job: Chief Farming Manager

Hobby: Mycology, Stone skipping, Dowsing, Whittling, Taxidermy, Sand art, Roller skating

Introduction: My name is Kerri Lueilwitz, I am a courageous, gentle, quaint, thankful, outstanding, brave, vast person who loves writing and wants to share my knowledge and understanding with you.